Hi loved ones. I am happy to be writing to you, but unfortunately under a bit of unhappy circumstances. I actually was going to delay posting until after tomorrow, but since there is no telling what tomorrow (any tomorrow) may bring, I thought it might be best to write today.
So if you've been following along for a little while, you know that a few months ago they found a mass in my liver and they ruled it a hyperplasia. They switched around my medication, and ta-da, my little liver friend would shrink away and be a bother no more. I went for my three month follow-up last week, and my oncologist told us that the mass did not shrink. Actually, rather strangely, it got a bit bigger. It didn't grow all that much, but it is odd in light of the fact that it was supposed to decrease in size.
So... they scheduled me for some more testing (a long and arduous PET scan yesterday) and I will meet with the doctor tomorrow to discuss the results. If the scan doesn't show anything indicating cancer then they will schedule a CT-guided needle biopsy (hopefully as fun as it sounds). If the results indicate cancer or something along those lines they will discuss surgery. Either way, the short road ahead of us looks a tiny bit grim.
However, I am keeping a positive attitude (except when alone in the car when yelling and whatnot is permissible). I have had several moments of lapsing into...mostly frustration than anything. It's so hard to know you have worked so hard for so long and then something completely outside of your control can pull the theoretical rug out from under you. Meaning, that this is particularly poor timing given the impending doom of comps, but I do not at all want to postpone them until November (the next available time to take them).
But, I will keep you posted and updated as I learn what is going on. In the mean time I ask for your thoughts and prayers (when you can spare them; so many people are going through so many worse things than I). Wish me and "Mini-Wells" (the tiny, fluffy stuffed puppy that my sweet boyfriend gave me for Easter and looks much like Wellington--thus the name "Mini-Wells"...Since boyfriend has been out of town on work while much of this is going on, Mini-Wells has been accompanying me to the hospital, etc.) lots of luck. We'll talk to you soon.
C
Welcome to my life...
Hello, kind reader, and thanks for coming! You are probably reading this because you fall into one of the following categories:
1. My family
2. My near and dear friends
3. You accidentally typed in the wrong URL
But if, by chance you are not a part of one of those categories I hope you will still take a minute to read some of my posts. What I'm all about is cancer, particularly adolescent cancer. I had it, I owned it, I beat it, and here I am today. I am now getting my doctorate doing research with adolescent cancer patients and survivors. I came out okay on the other end of something awful, and now I want to make a difference by helping others. The way I see it, it's all about support--helping each other, seeing that someone has been there and made it. When I was 16 I felt completely alone, and I don't want others to feel that way. My idea is that maybe we can help each other by talking and sharing our stories. So here are some of mine...
Casey
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