Welcome to my life...





Hello, kind reader, and thanks for coming! You are probably reading this because you fall into one of the following categories:

1. My family
2. My near and dear friends
3. You accidentally typed in the wrong URL

But if, by chance you are not a part of one of those categories I hope you will still take a minute to read some of my posts. What I'm all about is cancer, particularly adolescent cancer. I had it, I owned it, I beat it, and here I am today. I am now getting my doctorate doing research with adolescent cancer patients and survivors. I came out okay on the other end of something awful, and now I want to make a difference by helping others. The way I see it, it's all about support--helping each other, seeing that someone has been there and made it. When I was 16 I felt completely alone, and I don't want others to feel that way. My idea is that maybe we can help each other by talking and sharing our stories. So here are some of mine...


Casey



Sunday, May 29, 2011

And then it was Sunday...

Hi Readers, I hope you are having a lovely Memorial Day weekend. I know where I am it is sunny and gorgeous outside. Granted, I can only see the beautiful weather as I seethe with envy from inside the library and school buildings. No, that is an exaggeration; I am in a more positive mood than I let on. You see, my comps are only a Monday, Tuesday, and Wednesday away. I cannot believe that they are already here. But, I have studied, I feel pretty prepared, and I know that all of the hard work will be worth it afterward when I have at least a solid week to relax. My only concern is that the reason I feel ready for them is not so much that I feel solidly prepared to ace them, but that I really just want them to be over, for better or worse! My younger sister was an absolute angel and spent three hours with me yesterday calling things out and patiently waiting through my several tantrums, frustrations, and epiphanies. Sometimes it really does help to have company while you study. Or it does for me, at least.

On a sidenote, my sweet, sweet L (whom I have been tutoring for three years) graduated high school on Friday! I cannot tell you how proud I am of her, and how much she has accomplished. She is off to college now and I am having a very strange (perhaps maternal?) feeling as she is "all grown up" now! I'm going to miss our weekly sessions, but I could not be more happy for her. And we had a wonderful dinner on Friday night to celebrate this accomplishment.

So anyway, I just finished my 6th or so practice session for comps. Knowing the material is only half the battle, as you have to have a great deal of stamina to write without stopping for 3 hours, break for an hour, and then do another 3 hours. That second 3 hour session is what is going to get me. Not to mention day 2 of the same schedule. What is crazy is that even with the 3 hour time block, I have found that I still have trouble getting out all of the information I need to get down. Last weekend I wrote for the solid 3 hour practice session and when I finished I had 10 solid pages written (single-spaced), yet there was still information and examples I didn't get down. Got to keep working at it, I suppose.

I am currently impressed with my will power to say no (something at which I am truly awful). I hate saying no to people whether it is something fun that I want to do or something not-so-fun that someone asks me to do. However I have currently said "No" to the following things:

1. Babysitting (very tough; I hate turning people down)
2. A weekend at the LAKE with friends (that one really, really stung)
3. A different weekend by the POOL with other friends (oh, the pain)
4. Dinners/drinks with friends (not as difficult as 2 and 3, but still unhappy)

I have also noticed that many things which I usually value highly have become less important to me. For instance:

1. Personal appearance (showering and brushing teeth are about as good-looking as I've been getting)
2. Neat and tidiness (my closet is full to bursting with odds and ends that I don't have time to find a real place for)
3. Physical activity (I don't think you can get more sedentary than studying 6-10 hours a day)
4. Social interaction (my phone is always on silent and I have only been enjoying the company of textbooks)
5. Sunlight (I am so pale it looks rather sickly--in need of a spray tan)
6. Positive impressions (I think I have worn the same outfit like 3 days in a row, or at least variations of it--whatever I can find that is clean is what I wear without regard for matching, etc.)
7. Speaking in complete/articulate sentences (a lot of that is due to the social isolation one)

However, I am just grateful that I have wonderful friends and family who have been urging me on and supporting me, and an amazing boyfriend who is okay with the fact that we haven't had a legitimate conversation in over a week due to the studying/work/phone on silent/sleep deprivation schedule. Thank you all for your sweet thoughts, prayers, and well wishes. Friday at 4pm I'm reclaiming my life :)

Casey

Monday, May 23, 2011

Happy Monday!

What a paradox, I know: "Happy Monday". But unlike most Mondays, this one is rather happy. You see, my dears, the kind and wonderful radiologist I saw called me yesterday (yes, he took time out of his Sunday to call me--good people do still exist!) and he told me that the biopsy showed a benign fibrous adenoma! So hooray!!! Breast tumor down, liver tumor to go! I am extremely confident that this is largely due to all of your generous outpourings of thoughts, prayers, and sweet words. I am so blessed to have such wonderful people in my life to get me through these bumps (and by "bumps", I mean "sometimes bumps, but other times gigantic potholes or bottomless pits") in the road and keep me going.

With great news like that it makes it difficult not to see the sunny side of even not-so-sunny things. For instance, I now am only about 10 days away from comps, but I am handling the panic pretty well, I think. Sure, all of this studying and thinking is rather miserable, but, at least I have a nice cozy office to work in! In fact, I am considering bringing a sleeping bag to work and making a nest of sorts underneath my desk (anyone see that episode of Seinfeld?). Just take a look at all the space:


And sure the stress is causing me to break out like a 13 year old boy the summer before 9th grade, but hey, that's okay! Luckily with all of the studying isolation no one can see my poor, splotchy skin anyway! I'm still working on the brightside of mouth ulcers, but the fact that I think there might be one at all seems kind of promising, right? See, there is a brightside to (most) everything, even when you realllly have to reach to find it, ha! So for now, take it all in stride and join me in my mission of finding positives in the not-so-positive. Just look at what wonderful wallpaper studying makes:



Ha. And hopefully within the next week I will have something actually interesting to tell you about. I'm hoping to get a free night to be crafty again, but until then I will settle for being crafty (really just colorful) with my studies... Love you all!

C

Thursday, May 19, 2011

What We Know

Hi, Loves. I want to let you know what I know, which is both good and frustrating, per ususal. So yesterday I went for the breast ultrasound at the big clinic downtown. I had an entourage that rivals Diddy's with my mom, dad, one sister, and boyfriend. Wellington wanted to come but apparently they frown on live animals in hospital settings.

They got me back pretty quickly (remarkable, let me assure you) and gowned me up. The radiology nurse/technician (I don't know, I didn't ask for credentials...she could have been the barrista from the coffee shop in the lobby) took me back to a room where I was asked a few preliminary questions and then had the awkward assignment of lying down (exposed, if you will) while she began the ultrasound. She found the lump/nodule/whatever you want to call it, and took some lovely snapshots on the ultrasound screen (hello, Christmas card picture). I, naturally, asked a million questions because I am not satisfied to simply lie there obediently and keep quiet. She took it in stride, though. She told me if this is what she was "almost positive" it is then there would likely be some other little nodules. She used some metaphor of like "this little guy likes to have a party and bring a bunch of his friends"... Yeah, not my kind of party either. So she ultrasounded (new word for today) me all over and in the under arm area, but none of "his friends" had RSVP'd I guess. So then she says, "Well, there isn't always more than one..." Hm.

So then the radiologist came in and he did a similar look around with the ultrasound and said that he also thought it was a pretty typical, run of the mill-type of lump that people get called a fibrous adenoma. Sounded pretty legit to me, and he said he was going to pop over to his office where the fancier imaging is (higher resolution, more mega-pixels or what have you), and he'd be right back. While we was gone, the nurse/tech and I chatted and she assured me that there wouldn't be biopsy, etc. and they would schedule me for 6 month follow-up for the next couple of years, and so on.

Then the radiologist came back in and said, "Well..." and the nurse/tech said, "I know what that means". And guess what? I did too. I've heard enough of those "Well"s to know that things weren't what he had expected in some way. Apparently the max size of these fibrous adenomas is 25mm, but little old special me--mine was 27mm. So given that it is larger than "normal" ones... and then he said my three least favorite words: "With your history...". But I know it's better safe than sorry and I didn't complain. However those three words are also what resulted in a colonoscopy for me when I was 18, so you can imagine my displeasure at their mention.

So the two of them got all the supplies ready and he explained what they were going to do: use the ultrasound to mark lines of where they should go in, numb me up with some lidocaine, prod a little bit in the place, make a "skin nick" so the biopsier (also a new word) could get in there, then take 5 tissue samples of the area, and patch me up. They did all of these things and it did not hurt (I actually prefer it to those 2 hour liver MRIs they've been doing on me--how weird to have a "preference" of medical testing). The strange part (though also interesting) was that I could see exactly what was happening via the live ultrasound monitor. In fact, as I watched the "feed" if you will, it was like "Live! From Casey's Breast!". While there was no special guest performance or anything, it was still rather fascinating.

At the end of the biopsy-ing (given up with actual words and just going with my own at this point), he tells me that they are going to put a titanium clip into the nodule so that when I ever have a mammogram, whoever does it will see it and know that there has been a biopsy there. I suppose it's the equivalent of writing "Dr. F waz here" or something. Fret not, though, this clip is miniscule and I will have no trouble going through airport security, so they tell me. But the silliest thing was that right before he did the clip thing he said "Okay, I am deploying the clip". I naturally started giggling and said, "Did you just say you were about to deploy the clip??". He kind of gave a laugh to and said it again in a mocking voice (but apparently you're supposed to be pretty still during these things so I don't think he was thrilled that I was giggling). And I told him, "That is the most ridiculous expression I have ever heard." It made it sound like he was about to drop 2 tons of emergency supplies into my breast, isolated by a Berlin wall-type structure. But it was not nearly as dramatic as all that, and within about an hour the whole process was complete.

They are sending the biopsy to pathology (and let me just tell you, breast tissue (or at least whateve they pulled out of me is gross-looking). And we should have results on Monday. The radiologist said he isn't worried, this is more of just standard procedure, and I am not too worried either. More just achy and sore and tired and mildly (depending on who you ask) irritable. I received instructions on how to deal with the bandages and not to lift anything heavier than a gallon on milk (which, as Patrick pointed out, means I cannot lift my backpack), and some other things. But my older sister took me to Yogurt Mountain and Patrick brought me some yummy dinner, so I am very blessed and happy to be so well-taken care of.

And you all, with your sweet and kind and thoughtful messages and calls and emails; I can't thank you enough! Your prayers are definitely being heard, and I could not be more appreciative. I will let you know as soon as we know anything, and hopefully I'll be able to shoot out a blog over the weekend. In the meantime, it's back to the books for me. Love you!

C

Tuesday, May 17, 2011

Another Tuesday

Good Morning, All. I hope you had lovely weekends and (at the very least) decent Mondays. My weekend was pleasant enough. Comps practice session on Saturday (not looking forward to the real thing, 3 hours at a time is tough). But rewarded with a nice dinner and a productively cleaning Sunday. Now back to business as usual (lockdown in my office). But look at how creative I have made studying!


This is what I call my "Theory Wall" (also called my "Wall of Theory"--the creativity ended with colored markers, I guess). Anyway this is a wall in my office and those are all index cards that I have put the bare bullet points of each theory on in an attempt to learn everything I need to know. Granted, knowing the bullet points is not sufficient to flesh out everything I will be forced to regurgitate in three hours (about health behavior theory), but it is a start. I also find that the writing and re-writing process helps to ingrain things into my brain, so that's a plus. I wish I also had a picture of my waste bin in my office (though I don't wish it so much that I am actuallly going to take one and upload it). The contents of my bin are very indicative of the past week. It's pretty much empty Starbucks cups (I can't drink coffee because of the caffeine but I can enjoy a hot chocolate and try to trick myself into thinking it is something highly caffeinated), a few soda cans (1. Diet Caffeine Free, but again with the tricking and 2. I hate throwing away cans but my building doesn't recycle anything but paper--usually I have a pile of about 10-15 cans and plastic bottles in my car because I can't bring myself to toss them so I take them home to recycle...it's a sickness), and this is settled next to my giant pile of discarded paper (which will be recycled...Cori).

In my other attempts to stay sane I have taken up "crafting" in my daily forced 1-2 hour breaks between studying and tutoring. I have even been to a couple of thrift stores to pick up old, generally ugly picture frames and things which I am refurbishing (i.e. painting) and doing mats for, etc. There was also a horrific bender at Hobby Lobby in which I spent more money than on my last grocery trip (or gas purchase which is, as you all know, horrendous). I should not be allowed in stores such as Hobby Lobby unsupervised. Anyway, I will showcase some of my work for you (because I know you are breathless with anticipation. Fear not, just scroll down...).


This is one of my favorites: Frame from Salvation Army, and I did the mat myself with some fabric, etc. Total cost: Under $4. Although I don't know how man hours and patience figure in to that total. I left them out to make the cost seem dramatically lower. Also:



Here is another I worked on for a few days (waiting for paint to dry and only being able to work in short intervals...). I really wish I had a before picture, but sadly I don't. I found this in the "picture frame" section at Salvation Army. It was a really gross brown with just an empty weird space for a picture (I guess) in the middle. I painted it, dismantled it and did some fabric magic, put it back together (which is the really impressive part, as my past does not indicate great prowess with reassembly, e.g. the VCR my cousin Laura and I dismembered to retrieve a copy of "Tommy Boy" that was stuck and in order to put it back together she had to sit on the top of it while I frantically put the screws back in... It literally was bulging on all sides and I don't think my aunt was very pleased). Anyway, I found some coordinating ribbon and voila, a decorative tray.

Okay, enough stalling, and  back to business. I go for the breast ultrasound (and potential mammogram and/or biopsy) tomorrow afternoon. I am a bit more nervous than usual because I have never had this done. Also I had a vivid stress dream about it last night which isn't really helping alleviate my nerves. However, in a rather bizarre coincidence, my friend Katie from college messaged me that she was actually having the same thing last week and generously offered some perspective basd on her experience. It was greatly helpful, and that actually did help me to be a bit less nervous. Also, as a sidenote, the aforementioned Katie's results were good, which I am very happy to know, and I am so, so appreciative that she got in touch with me! So tomorrow I will go and see what this is all about, and hopefully leave with a glowing report that will send me on a euphoric study high until comps. I do request some prayers if you can spare them, and I will let you know what the test (hopefully doesn't) turn up.

C

Tuesday, May 10, 2011

Tuesday, It Is.

Happy Tuesday, fair readers. I hope you are all doing well and had a nice weekend. I know for many people the weekend was spent helping with tornado clean-up (a very long, difficult process) and assistance. I hope that everyone is still safe and sound and that some progress was made. I actually spent the weekend in a very nice way: helping celebrate the wedding of my dear friend Christina. We had a girls' night on Thursday (painting some pottery-pictures to follow...maybe...if it turns out okay!), then luncheon, rehearsal, and crawfish boil rehearsal dinner! It was all really fun and relaxed and wonderful, topped only by the beautiful ceremony and reception on Saturday! All you ladies will be extremely envious of the amazing bridesmaid dresses Christina picked out for us (green seersucker, so, so cute!); it is literally a dress that I will wear again (soon and frequently, I imagine). Anyway, it was a great wedding weekend, followed by a quiet and lovely Mother's Day. And Happy Mother's Day to all of you great, dedicated, loving mothers (especially my own). I hope you were rightfully celebrated on Sunday and appreciated for everything that you do!

On the health front, I am scheduled for a breast ultrasound (and biopsy if needed--hopefully not needed) next Wednesday, May 18th. If you have an extra minute that day, please send up a prayer for me. This is actually a test that I have never had before (I didn't think there were any of those left!), so I am a bit nervous, not knowing what to expect, and naturally a bit anxious about the results. Lucky for me, I have plenty of studying to keep me busy until then. I'm currently focusing my efforts on Health Communications (Part 2 of 4 of comps). It is interesting, but difficult to envision having an endless supply of knowledge of the whole field accessible in my mind for whatever question(s) the comp might entail. We're making progress, though.

Anyway, I just wanted to update, say I'm thinking of everyone out there, and wish congrats to my dear Christina and her new husband--who are not reading this, as they are on their honeymoon in Napa :) as well as my sincere thank you to all the wonderful mother's out there, especially my mother, my two amazing grandmothers, and my two unparalleled godmothers. Take care of yourselves, and I'll be in touch soon (perhaps with amusing photos from my shoddy attempt at pottery, ha).

C

Monday, May 2, 2011

Another Monday

Here is another Monday. Like most, Mondays are not my favorite day, but this particular Monday is markedly different. So much has happened in just one week, it's hard to get my head around it. Found out I might/might not have cancer in my liver. Found out I might/might not have cancer in my breast. Thousands of people were devasted by the terrifying tornados just miles from my home. Osama Bin Laden is dead. I feel as though this is a lot of information for anyone to process, particularly in such a short amount of time. I hope that we can keep the dramatic and life-altering news to a minimum for the next few weeks (at least).

I am trying to avoid thinking about the things that I am inevitably thinking about by attempting to regain my focus. For example, this past weekend we held a wedding shower for a close friend. This coming weekend, my dear sweet, Christina is getting married, so I will be enjoying wedding festivities Thursday evening through Saturday. And in the meantime I am working on a final, and trying to get my head back on so that I can resume my comps preparation. To be clear, the latter is not on the same fun scale as the formers, but I'll take distraction where I can get it. Keep praying if you can, and I hope to have some good news for next time.

In the meantime, I think this picture (courtesy of my cousin K, taken on Easter) is a pretty good representation of the state of confusion we're all kind of in right now. Have I mentioned I love my family?